Limited……..Only by your Imagination…….Truly Living with Spinal Muscular Atrophy….

It has really been a long time since I sat behind a laptop to write a blog entry...........................… read more

Limited……..Only by your Imagination…….Truly Living with Spinal Muscular Atrophy…. Limited........Only by your Imagination.......Truly Living with Spinal Muscular Atrophy....

A Day For Avery…….

Three short months ago, the Skeeters were blessed with the opportunity to meet baby Avery Lynn Canahuati,… read more

A Day For Avery……. A Day For Avery.......

KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS……..

FDA APPROVED.....we are happy to be able to share this news with you. 1,631 days ago our Sophia was diagnosed… read more

KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS…….. KASPAR LABS GENE THERAPY FOR SPINAL MUSCULAR ATROPHY IS........

A Night For a Cure

August is SMA AWARENESS MONTH.....Please join us for a cocktail fundraising party on Thursday August… read more

A Night For a Cure A Night For a Cure

THIS IS THE MOMENT!!!!!

August is SMA Awareness month and do we have some great news to celebrate the occasion. Let the countdown… read more

THIS IS THE MOMENT!!!!! THIS IS THE MOMENT!!!!!

Golf for a Cure in honor of Nathan Banjany!!

SCF is so excited about the 2nd annual Golf Event in honor of Nathan Banjany, hosted by GMM Consulting,… read more

Golf for a Cure in honor of Nathan Banjany!! Golf for a Cure in honor of Nathan Banjany!!

Santa visits Sophia……

An amazing family friend contacted Santa and told him all about Sophia. Immediately upon hearing about… read more

Santa visits Sophia…… Santa visits Sophia......
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