Aiden……..
I remember when Sophia was first diagnosed and Vinny and I started meeting other SMA families online… read more
August is SMA AWARENESS MONTH……..
August is SMA AWARENESS month, and Sophia's Cure along with so many other SMA organizations works so… read more
In Memory of Sophie Kathleen TerHorst
We received the following letter the other day.....though Sophie was only here for a short while, she… read more
Aug 20, 2011 Hope For Charleston Spaghetti Fundraiser
Local Volunteer Firefighters located in the Reno Nevada area, are participating together to hold the… read more
How do you measure a year?….
I would like to start this post by thanking everyone who believed in our family, all of you who believed… read more
Oct 21, 2011 Golf Event benefitting SCF in honor of Nathan Banjany…..
SCF is so excited about the upcoming Golf Event hosted by GMM Consulting, Cuhaci and Peterson, Kimley-Horn… read more
Merry Christmas…..
Sophia has been sick for a while now and last week we found out she has Serratia, pseudomonas, and Staph......again… read more















