Newly Diagnosed

By: vgaynor
Saturday, May 1st, 2010

If you are a newly diagnosed parent to a child with SMA we understand that this time can be a scary and confusing for your family. Please know you are not alone.

Sophia’s Cure Foundation is dedicated to helping families affected by this devasting disease. We know what it meant to our family that we had someone who was going through the same thing to talk to. Your choice of care for your SMA child is a difficult and personal choice. We urge you to please read the information below and visit the websites to help you with your decision process.

(FSMA Booklet)

Respiratory Care

SMA Support

www.fsma.org

www.fightsma.com

www.smamedicalsupply.com

sophiascure@aol.com

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