Blog « Sophia's Cure Foundation

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SMAKids.org Dedicated to helping SMA families, SMAKids.org will strive to further increase SMA awareness. COMING SOON.

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Jun 14

Wonderful things…..

author: Vincent Gaynor

Sophia’s Cure Foundation has had some wonderful fundraisers going on in the past months. We would like to thank all the families who have reached out to us wanting to support and who believe in our small organization. When Vinny and I first discussed starting a foundation in honor of Sophia,...

Jun 11

Updates….

author: Vincent Gaynor

As you can see we are currently updating our website, hopefully all will be finished shortly. Sophia has been doing well, we had sophia's birthday party on May 29 and all our family and friends came out to celebrate our little miracle, the day couldn't have been better, the weather was perfect and...

Jan 31

Sophia is going to be a Big Sister

author: Vincent Gaynor

We were very surprised to learn in December that we were expecting another baby. Today after an incredibly trying 8 weeks we found out our baby boy is healthy. We went through such a gauntlet of emotions. We certainly did not want to put another child through what Sophia goes through on a daily...

Jan 28

Sophia 11 months

author: Vincent Gaynor

My beautiful Baby girl turned 11 months today. Against all odds and her diagnosis she is thriving and is such a happy baby. She smiles everyday and continues to fight fight fight. What sustains her is a steady diet of Love. We will continue to fill her with love every second of every day. Thank...

Jan 07

The Human Spirit

author: Vincent Gaynor

We received a letter on SophiasCure from a 9 year old girl who read Sophia's Story and was instantly touched by it, I have to tell you this letter made me cry, it amazes me how this 9 year old girl became so determined to help my baby girl....She is simply amazing....here is her letter.. Dear...

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